SlideShare a Scribd company logo
1 of 9
Download to read offline
Patient-generated data

        Alexandra Carmichael
   IFTF Health Horizons Conference
               July 2009
I track myself every day



• Chronic pain symptoms, supplements, mood, sex life
• Genetics research and bioinformatics background
• WebMD and DailyStrength, no patient data sites!
Culture of participation


                            • Started with 3
                              conditions, now 300

Data growth 25% per month
                            • 100+ measures tracked:
                              calories to chronic pain
                            • Medium-term: genomics,
                              streaming biometrics
What this means for
the future of health

       • Self-organized clinical trials -
         lithium trial
       • Social Data Network - private
         individual, open aggregate
       • Personalized medicine - which
         treatment will work for my
         symptoms?
Find me online



    • alexandra@curetogether.com
    • curetogether.com/blog
    • @accarmichael on Twitter

More Related Content

Similar to Patient-generated data

Lynn Laidlaw and Suzanne morris vasculitis uk crdn summit 2017
Lynn Laidlaw and Suzanne morris vasculitis uk crdn summit 2017Lynn Laidlaw and Suzanne morris vasculitis uk crdn summit 2017
Lynn Laidlaw and Suzanne morris vasculitis uk crdn summit 2017CamRARE Disease Network
 
Ucsd choosing wisely in healthcare
Ucsd choosing wisely in healthcareUcsd choosing wisely in healthcare
Ucsd choosing wisely in healthcareZack Mahan
 
2018: Ucsd choosing wisely in healthcare
2018: Ucsd choosing wisely in healthcare2018: Ucsd choosing wisely in healthcare
2018: Ucsd choosing wisely in healthcareSDGWEP
 
BIL 2009 Personalized Medicine And Personal Genomics
BIL 2009 Personalized Medicine And Personal GenomicsBIL 2009 Personalized Medicine And Personal Genomics
BIL 2009 Personalized Medicine And Personal GenomicsJonathan Sheffi
 
From “Big Data” to Digital Medicine--PYA Explores Innovations in Healthcare
From “Big Data” to Digital Medicine--PYA Explores Innovations in HealthcareFrom “Big Data” to Digital Medicine--PYA Explores Innovations in Healthcare
From “Big Data” to Digital Medicine--PYA Explores Innovations in HealthcarePYA, P.C.
 
Genetic Screening and Genetic Counselling ,Applications
Genetic Screening and Genetic Counselling ,ApplicationsGenetic Screening and Genetic Counselling ,Applications
Genetic Screening and Genetic Counselling ,Applicationshephz
 
MIT Medical Evidence Bootcamp for Journalists 2012
MIT Medical Evidence Bootcamp for Journalists 2012MIT Medical Evidence Bootcamp for Journalists 2012
MIT Medical Evidence Bootcamp for Journalists 2012GarySchwitzer
 
Deliberate self harm by Dr. R. Monisha
Deliberate self harm by Dr. R. MonishaDeliberate self harm by Dr. R. Monisha
Deliberate self harm by Dr. R. MonishaC Anusha
 
Schwitzer keynote to ISDM 2013 Lima, Peru
Schwitzer keynote to ISDM 2013 Lima, PeruSchwitzer keynote to ISDM 2013 Lima, Peru
Schwitzer keynote to ISDM 2013 Lima, PeruGary Schwitzer
 
Definition of Weight loss in the elderly
Definition of Weight loss in the elderlyDefinition of Weight loss in the elderly
Definition of Weight loss in the elderlySurgerica
 
Presentation edeg adrian_ahne (1)
Presentation edeg adrian_ahne (1)Presentation edeg adrian_ahne (1)
Presentation edeg adrian_ahne (1)Compte Epiconcept
 
e-Patient Dave AF4Q South Central PA 01-11-2019
e-Patient Dave AF4Q South Central PA 01-11-2019e-Patient Dave AF4Q South Central PA 01-11-2019
e-Patient Dave AF4Q South Central PA 01-11-2019e-Patient Dave deBronkart
 
Cancer vaccine presentation2
Cancer vaccine presentation2Cancer vaccine presentation2
Cancer vaccine presentation2jjhh5
 
Doctors & Patients on the Same Page: #SIIM18 opening keynote
Doctors & Patients on the Same Page: #SIIM18 opening keynoteDoctors & Patients on the Same Page: #SIIM18 opening keynote
Doctors & Patients on the Same Page: #SIIM18 opening keynotee-Patient Dave deBronkart
 
Free to Be You and Me: Providing Culturally-Sensitive Patient Care to Transge...
Free to Be You and Me: Providing Culturally-Sensitive Patient Care to Transge...Free to Be You and Me: Providing Culturally-Sensitive Patient Care to Transge...
Free to Be You and Me: Providing Culturally-Sensitive Patient Care to Transge...UC San Diego AntiViral Research Center
 
The power of personal choices
The power of personal choicesThe power of personal choices
The power of personal choicesEsserHealth
 

Similar to Patient-generated data (20)

Lynn Laidlaw and Suzanne morris vasculitis uk crdn summit 2017
Lynn Laidlaw and Suzanne morris vasculitis uk crdn summit 2017Lynn Laidlaw and Suzanne morris vasculitis uk crdn summit 2017
Lynn Laidlaw and Suzanne morris vasculitis uk crdn summit 2017
 
Ucsd choosing wisely in healthcare
Ucsd choosing wisely in healthcareUcsd choosing wisely in healthcare
Ucsd choosing wisely in healthcare
 
2018: Ucsd choosing wisely in healthcare
2018: Ucsd choosing wisely in healthcare2018: Ucsd choosing wisely in healthcare
2018: Ucsd choosing wisely in healthcare
 
BIL 2009 Personalized Medicine And Personal Genomics
BIL 2009 Personalized Medicine And Personal GenomicsBIL 2009 Personalized Medicine And Personal Genomics
BIL 2009 Personalized Medicine And Personal Genomics
 
Japanese presentation
Japanese presentationJapanese presentation
Japanese presentation
 
From “Big Data” to Digital Medicine--PYA Explores Innovations in Healthcare
From “Big Data” to Digital Medicine--PYA Explores Innovations in HealthcareFrom “Big Data” to Digital Medicine--PYA Explores Innovations in Healthcare
From “Big Data” to Digital Medicine--PYA Explores Innovations in Healthcare
 
Genetic Screening and Genetic Counselling ,Applications
Genetic Screening and Genetic Counselling ,ApplicationsGenetic Screening and Genetic Counselling ,Applications
Genetic Screening and Genetic Counselling ,Applications
 
MIT Medical Evidence Bootcamp for Journalists 2012
MIT Medical Evidence Bootcamp for Journalists 2012MIT Medical Evidence Bootcamp for Journalists 2012
MIT Medical Evidence Bootcamp for Journalists 2012
 
WomanUp Summit_Final
WomanUp Summit_FinalWomanUp Summit_Final
WomanUp Summit_Final
 
Deliberate self harm by Dr. R. Monisha
Deliberate self harm by Dr. R. MonishaDeliberate self harm by Dr. R. Monisha
Deliberate self harm by Dr. R. Monisha
 
Schwitzer keynote to ISDM 2013 Lima, Peru
Schwitzer keynote to ISDM 2013 Lima, PeruSchwitzer keynote to ISDM 2013 Lima, Peru
Schwitzer keynote to ISDM 2013 Lima, Peru
 
Definition of Weight loss in the elderly
Definition of Weight loss in the elderlyDefinition of Weight loss in the elderly
Definition of Weight loss in the elderly
 
Presentation edeg adrian_ahne (1)
Presentation edeg adrian_ahne (1)Presentation edeg adrian_ahne (1)
Presentation edeg adrian_ahne (1)
 
e-Patient Dave AF4Q South Central PA 01-11-2019
e-Patient Dave AF4Q South Central PA 01-11-2019e-Patient Dave AF4Q South Central PA 01-11-2019
e-Patient Dave AF4Q South Central PA 01-11-2019
 
Cancer vaccine presentation2
Cancer vaccine presentation2Cancer vaccine presentation2
Cancer vaccine presentation2
 
Doctors & Patients on the Same Page: #SIIM18 opening keynote
Doctors & Patients on the Same Page: #SIIM18 opening keynoteDoctors & Patients on the Same Page: #SIIM18 opening keynote
Doctors & Patients on the Same Page: #SIIM18 opening keynote
 
Free to Be You and Me: Providing Culturally-Sensitive Patient Care to Transge...
Free to Be You and Me: Providing Culturally-Sensitive Patient Care to Transge...Free to Be You and Me: Providing Culturally-Sensitive Patient Care to Transge...
Free to Be You and Me: Providing Culturally-Sensitive Patient Care to Transge...
 
Butler plenary icmi
Butler plenary icmiButler plenary icmi
Butler plenary icmi
 
Gene therapy
Gene therapyGene therapy
Gene therapy
 
The power of personal choices
The power of personal choicesThe power of personal choices
The power of personal choices
 

Recently uploaded

Asthma Review - GINA guidelines summary 2024
Asthma Review - GINA guidelines summary 2024Asthma Review - GINA guidelines summary 2024
Asthma Review - GINA guidelines summary 2024Gabriel Guevara MD
 
College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...
College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...
College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...Miss joya
 
Call Girls Hebbal Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Hebbal Just Call 7001305949 Top Class Call Girl Service AvailableCall Girls Hebbal Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Hebbal Just Call 7001305949 Top Class Call Girl Service Availablenarwatsonia7
 
Call Girls Whitefield Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Whitefield Just Call 7001305949 Top Class Call Girl Service AvailableCall Girls Whitefield Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Whitefield Just Call 7001305949 Top Class Call Girl Service Availablenarwatsonia7
 
Call Girls Electronic City Just Call 7001305949 Top Class Call Girl Service A...
Call Girls Electronic City Just Call 7001305949 Top Class Call Girl Service A...Call Girls Electronic City Just Call 7001305949 Top Class Call Girl Service A...
Call Girls Electronic City Just Call 7001305949 Top Class Call Girl Service A...narwatsonia7
 
Russian Call Girls in Pune Riya 9907093804 Short 1500 Night 6000 Best call gi...
Russian Call Girls in Pune Riya 9907093804 Short 1500 Night 6000 Best call gi...Russian Call Girls in Pune Riya 9907093804 Short 1500 Night 6000 Best call gi...
Russian Call Girls in Pune Riya 9907093804 Short 1500 Night 6000 Best call gi...Miss joya
 
VIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service Lucknow
VIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service LucknowVIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service Lucknow
VIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service Lucknownarwatsonia7
 
High Profile Call Girls Jaipur Vani 8445551418 Independent Escort Service Jaipur
High Profile Call Girls Jaipur Vani 8445551418 Independent Escort Service JaipurHigh Profile Call Girls Jaipur Vani 8445551418 Independent Escort Service Jaipur
High Profile Call Girls Jaipur Vani 8445551418 Independent Escort Service Jaipurparulsinha
 
Mumbai Call Girls Service 9910780858 Real Russian Girls Looking Models
Mumbai Call Girls Service 9910780858 Real Russian Girls Looking ModelsMumbai Call Girls Service 9910780858 Real Russian Girls Looking Models
Mumbai Call Girls Service 9910780858 Real Russian Girls Looking Modelssonalikaur4
 
Artifacts in Nuclear Medicine with Identifying and resolving artifacts.
Artifacts in Nuclear Medicine with Identifying and resolving artifacts.Artifacts in Nuclear Medicine with Identifying and resolving artifacts.
Artifacts in Nuclear Medicine with Identifying and resolving artifacts.MiadAlsulami
 
Call Girl Surat Madhuri 7001305949 Independent Escort Service Surat
Call Girl Surat Madhuri 7001305949 Independent Escort Service SuratCall Girl Surat Madhuri 7001305949 Independent Escort Service Surat
Call Girl Surat Madhuri 7001305949 Independent Escort Service Suratnarwatsonia7
 
Call Girl Bangalore Nandini 7001305949 Independent Escort Service Bangalore
Call Girl Bangalore Nandini 7001305949 Independent Escort Service BangaloreCall Girl Bangalore Nandini 7001305949 Independent Escort Service Bangalore
Call Girl Bangalore Nandini 7001305949 Independent Escort Service Bangalorenarwatsonia7
 
Russian Call Girls Chickpet - 7001305949 Booking and charges genuine rate for...
Russian Call Girls Chickpet - 7001305949 Booking and charges genuine rate for...Russian Call Girls Chickpet - 7001305949 Booking and charges genuine rate for...
Russian Call Girls Chickpet - 7001305949 Booking and charges genuine rate for...narwatsonia7
 
Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...
Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...
Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...narwatsonia7
 
Bangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% Safe
Bangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% SafeBangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% Safe
Bangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% Safenarwatsonia7
 
Call Girl Lucknow Mallika 7001305949 Independent Escort Service Lucknow
Call Girl Lucknow Mallika 7001305949 Independent Escort Service LucknowCall Girl Lucknow Mallika 7001305949 Independent Escort Service Lucknow
Call Girl Lucknow Mallika 7001305949 Independent Escort Service Lucknownarwatsonia7
 
Call Girls Jayanagar Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Jayanagar Just Call 7001305949 Top Class Call Girl Service AvailableCall Girls Jayanagar Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Jayanagar Just Call 7001305949 Top Class Call Girl Service Availablenarwatsonia7
 
Ahmedabad Call Girls CG Road 🔝9907093804 Short 1500 💋 Night 6000
Ahmedabad Call Girls CG Road 🔝9907093804  Short 1500  💋 Night 6000Ahmedabad Call Girls CG Road 🔝9907093804  Short 1500  💋 Night 6000
Ahmedabad Call Girls CG Road 🔝9907093804 Short 1500 💋 Night 6000aliya bhat
 
Call Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort Service
Call Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort ServiceCall Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort Service
Call Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort Serviceparulsinha
 
Housewife Call Girls Hoskote | 7001305949 At Low Cost Cash Payment Booking
Housewife Call Girls Hoskote | 7001305949 At Low Cost Cash Payment BookingHousewife Call Girls Hoskote | 7001305949 At Low Cost Cash Payment Booking
Housewife Call Girls Hoskote | 7001305949 At Low Cost Cash Payment Bookingnarwatsonia7
 

Recently uploaded (20)

Asthma Review - GINA guidelines summary 2024
Asthma Review - GINA guidelines summary 2024Asthma Review - GINA guidelines summary 2024
Asthma Review - GINA guidelines summary 2024
 
College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...
College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...
College Call Girls Pune Mira 9907093804 Short 1500 Night 6000 Best call girls...
 
Call Girls Hebbal Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Hebbal Just Call 7001305949 Top Class Call Girl Service AvailableCall Girls Hebbal Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Hebbal Just Call 7001305949 Top Class Call Girl Service Available
 
Call Girls Whitefield Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Whitefield Just Call 7001305949 Top Class Call Girl Service AvailableCall Girls Whitefield Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Whitefield Just Call 7001305949 Top Class Call Girl Service Available
 
Call Girls Electronic City Just Call 7001305949 Top Class Call Girl Service A...
Call Girls Electronic City Just Call 7001305949 Top Class Call Girl Service A...Call Girls Electronic City Just Call 7001305949 Top Class Call Girl Service A...
Call Girls Electronic City Just Call 7001305949 Top Class Call Girl Service A...
 
Russian Call Girls in Pune Riya 9907093804 Short 1500 Night 6000 Best call gi...
Russian Call Girls in Pune Riya 9907093804 Short 1500 Night 6000 Best call gi...Russian Call Girls in Pune Riya 9907093804 Short 1500 Night 6000 Best call gi...
Russian Call Girls in Pune Riya 9907093804 Short 1500 Night 6000 Best call gi...
 
VIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service Lucknow
VIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service LucknowVIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service Lucknow
VIP Call Girls Lucknow Nandini 7001305949 Independent Escort Service Lucknow
 
High Profile Call Girls Jaipur Vani 8445551418 Independent Escort Service Jaipur
High Profile Call Girls Jaipur Vani 8445551418 Independent Escort Service JaipurHigh Profile Call Girls Jaipur Vani 8445551418 Independent Escort Service Jaipur
High Profile Call Girls Jaipur Vani 8445551418 Independent Escort Service Jaipur
 
Mumbai Call Girls Service 9910780858 Real Russian Girls Looking Models
Mumbai Call Girls Service 9910780858 Real Russian Girls Looking ModelsMumbai Call Girls Service 9910780858 Real Russian Girls Looking Models
Mumbai Call Girls Service 9910780858 Real Russian Girls Looking Models
 
Artifacts in Nuclear Medicine with Identifying and resolving artifacts.
Artifacts in Nuclear Medicine with Identifying and resolving artifacts.Artifacts in Nuclear Medicine with Identifying and resolving artifacts.
Artifacts in Nuclear Medicine with Identifying and resolving artifacts.
 
Call Girl Surat Madhuri 7001305949 Independent Escort Service Surat
Call Girl Surat Madhuri 7001305949 Independent Escort Service SuratCall Girl Surat Madhuri 7001305949 Independent Escort Service Surat
Call Girl Surat Madhuri 7001305949 Independent Escort Service Surat
 
Call Girl Bangalore Nandini 7001305949 Independent Escort Service Bangalore
Call Girl Bangalore Nandini 7001305949 Independent Escort Service BangaloreCall Girl Bangalore Nandini 7001305949 Independent Escort Service Bangalore
Call Girl Bangalore Nandini 7001305949 Independent Escort Service Bangalore
 
Russian Call Girls Chickpet - 7001305949 Booking and charges genuine rate for...
Russian Call Girls Chickpet - 7001305949 Booking and charges genuine rate for...Russian Call Girls Chickpet - 7001305949 Booking and charges genuine rate for...
Russian Call Girls Chickpet - 7001305949 Booking and charges genuine rate for...
 
Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...
Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...
Housewife Call Girls Bangalore - Call 7001305949 Rs-3500 with A/C Room Cash o...
 
Bangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% Safe
Bangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% SafeBangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% Safe
Bangalore Call Girls Marathahalli 📞 9907093804 High Profile Service 100% Safe
 
Call Girl Lucknow Mallika 7001305949 Independent Escort Service Lucknow
Call Girl Lucknow Mallika 7001305949 Independent Escort Service LucknowCall Girl Lucknow Mallika 7001305949 Independent Escort Service Lucknow
Call Girl Lucknow Mallika 7001305949 Independent Escort Service Lucknow
 
Call Girls Jayanagar Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Jayanagar Just Call 7001305949 Top Class Call Girl Service AvailableCall Girls Jayanagar Just Call 7001305949 Top Class Call Girl Service Available
Call Girls Jayanagar Just Call 7001305949 Top Class Call Girl Service Available
 
Ahmedabad Call Girls CG Road 🔝9907093804 Short 1500 💋 Night 6000
Ahmedabad Call Girls CG Road 🔝9907093804  Short 1500  💋 Night 6000Ahmedabad Call Girls CG Road 🔝9907093804  Short 1500  💋 Night 6000
Ahmedabad Call Girls CG Road 🔝9907093804 Short 1500 💋 Night 6000
 
Call Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort Service
Call Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort ServiceCall Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort Service
Call Girls Service In Shyam Nagar Whatsapp 8445551418 Independent Escort Service
 
Housewife Call Girls Hoskote | 7001305949 At Low Cost Cash Payment Booking
Housewife Call Girls Hoskote | 7001305949 At Low Cost Cash Payment BookingHousewife Call Girls Hoskote | 7001305949 At Low Cost Cash Payment Booking
Housewife Call Girls Hoskote | 7001305949 At Low Cost Cash Payment Booking
 

Patient-generated data

  • 1. Patient-generated data Alexandra Carmichael IFTF Health Horizons Conference July 2009
  • 2. I track myself every day • Chronic pain symptoms, supplements, mood, sex life • Genetics research and bioinformatics background • WebMD and DailyStrength, no patient data sites!
  • 3.
  • 4.
  • 5.
  • 6.
  • 7. Culture of participation • Started with 3 conditions, now 300 Data growth 25% per month • 100+ measures tracked: calories to chronic pain • Medium-term: genomics, streaming biometrics
  • 8. What this means for the future of health • Self-organized clinical trials - lithium trial • Social Data Network - private individual, open aggregate • Personalized medicine - which treatment will work for my symptoms?
  • 9. Find me online • alexandra@curetogether.com • curetogether.com/blog • @accarmichael on Twitter