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What happens when you combine the participatory design research approach and a patient engagement company for a mHealth study?
1. What Happens When You Combine…
Patient
Engagement
Company
Participatory
Mobile
Design Health
Research Study
Approach
Kevin A. Clauson
Dana M. Lewis
Boris Glants
16. Measuring our outcomes of interest
Knowledge of disease
Health literacy
Engagement
Medication adherence
Clinical marker
17. RESEARCH STUDY FOR PATIENTS WITH DIABETES
Nova Southeastern University is conducting
research to see if texting can help people
remember to take their diabetes medicine
Who can participate?
If you are an adult diagnosed with
type 2 diabetes mellitus and:
Read English
Take diabetic medications by
mouth or injection (like insulin)
Own a cell phone that can send and
receive text messages
What would I receive if I
was in the research study?
Free blood glucose (Hemoglobin
A1C) testing
$20 worth of Publix gift cards
If you are interested in learning more about this 6 month study, please
contact Dr. Kevin Clauson at 754-300-TEXT (8398)
18. Lessons learned
1. Impact of involvement of
patient on front end on
ethics/IRB/IC
2. Research participants
versus research subjects
3. Technology has potential
to reduce clinician and
patient burden
IRB=institutional review board, IC= informed consent
28. Lessons Learned
1. As patients,
we have a
valuable role,
but it is
different.
2. Don’t let
yourself be
inhibited from
fully
participating
in the design
process.
31. Role in ReMIND Study
Engage the patient
Simplify data
collection
Easily extract
insights
32. The Art of Engaging Patients
Contextually relevant
images boost
understanding and
meaning
Patients can’t wait to
see what we are
going to ask them
next
33. The Art of Engaging Patients
Only serve up one
question per page
to sharpen
respondent focus
34. The Art of Engaging Patients
Increase perceived
— and actual —
speed by providing
robust skip logic
and broad range of
“tapable” answer
constructs (rather
than free text)
36. Lessons Learned
1. Engagement is iterative
2. There are many
opportunities to
leverage patient
engagement
technology in research
37. It’s time to work
together to
improve patient
outcomes
38. Acknowledgments
Alexandra Perez, PharmD
Goar Alvarez, PharmD
Naushira Pandya, MD
Joshua Caballero, PharmD
Andrea Fass, PharmD
Sydney Kchao, PharmDCand
39. Images
• http://www.flickr.com/photos/santheo/5074032126/sizes/o/
• http://anewscafe.com/wp-content/uploads/2009/10/root-1.jpg
• http://2.bp.blogspot.com/-H51sJ8-jkP0/TyLXw-UWRBI/AAAAAAAABRY/_ZtBLF296No/s1600/ROOTS.jpg
• http://memotext.com
• http://www.flickr.com/photos/jimsawthat/4682146054/sizes/o/
• http://www.friendship-quotes.info/wp-content/uploads/2010/05/1_-_Gotham.jpg
Images without citations are
licensed and/or rights are held
by the presenter
40. Questions?
Kevin Clauson, PharmD
clauson@nova.edu
@kevinclauson
www.CCHIR.org
Dana M. Lewis
@danamlewis
www.swedish.org
Boris Glants
boris@tonicforhealth.com
www.tonicforhealth.com