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City of hope presso
WHY PEOPLE WRITE BLOGS
To share expertise
To connect with a community
To sell things/ideas
As a therapeutic tool
To gain knowledge
To sway public opinion




                         AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
WHY DO PEOPLE READ BLOGS
Accidentally:
•  Search engines
•  Links from friends via email
•  Links from social networks
With Purpose:
•  An emotional investment in the author’s life or
   perspective




                            AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
KEY POINTS IN BLOG WRITING

Passion
Headlines
Originality
Searchability




                    AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
GOOGLE FOR “BREAST CANCER”


1.  NIH                        7.  WebMD
2.  BreastCancer.org           8.  Mayo Clinic
3.  Susan G Komen 5k           9.  Cancer.gov
4.  Susan G Komen              10. Cancer.org
5.  Wikipedia                  11. TheBreastCancerSite.com
6.  NationalBreastCancer.org




                               AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
FORUMS

Cancerforums.net BreastCancer.org Poz.com eHealthForum.com
From a strabismus forum:




                                     AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
YouTube




AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
HEATHCARE IN BLOGS

One nurse made a big bloody mess while
accessing Jesse’s vein for a blood draw. We
were concerned that she was getting
covered in his blood without wearing any
gloves… bad. (I wonder what infectious
disease girl would think of that!) One
respiratory tech came to do Jesse’s
breathing treatments DURING the contrast
CT scan. Seriously? He’s a little busy right
now…. kristinology.com




                                   AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
After waiting all day without a drop to drink or bite to eat, as per presurgical
instructions, I finally found out that they wouldn’t be able to take me for
surgery today to insert my port after all. A full day of scheduled procedures
+ an emergency added to the schedule at the last minute meant that they
just woudn’t get to me today. So at 3:15 I was able to eat breakfast and
have my morning Diet Coke.

The nurses finally found me another room too – I woke at 6 a.m. to the
sound of banging on the walls and power drills shortly thereafter, as the
hospital pit crew deconstructed the room next to me. I don’t know what they
were doing exactly, but the door was covered with layers of plastic sheeting
and even the nurses weren’t to knock. I’m happy to be moved down the hall,
even if it did mean lying on the couch in the family waiting room most of the
day, until they were able to find me a bed in another room.

Toddler Planet




                                        AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
i'm sure every year i write about it - about the beautiful hideousness that is
oncology at the holidays. in the past, i'm sure i've used words like poignant. this
year i think i'll use sucks - infinitely less poetic, but oh so accurate.

when your well-meaning spouse and kids say 'tell me about your day', you'll think
with equal parts truth and cynicism you don't mean that. because here's the thing -
i really don't have the words...and if i find them - watch out - you seriously might
regret asking.

but they'll keep asking and the patients that occupy much of your time and your
mental space will become known to your family on some level:

'mom, how's your surfer doing?' - he's hanging in there
'how's the gardener?' - she's doing great
'how's the young mom?' - she's not doing so well OncRN




                                          AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
NOT ALL REVIEWS ARE CREATED EQUAL

       Too bad I cannot give them a zero. My dad has been
       a patient here numerous times. My dad was
       diagnosed with cancer last Christmas plus I found
       out that there were other things wrong too. I feel that
       city of hope did not help my dad. My dad passed
       away on Valentines day. I really miss my dad. I will not
       recommend this hospital to anyone. Yelp




                               AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
SOME REVIEWS NEED TO BE ADDRESSED
This is an update of my recent review. The nurses at City of Hope are fantastic; however
they are limited to what the doctor orders. Currently, we do not have a primary oncologist
because the oncologist does not want to be responsible for any of my family member's
care. The primary oncologist wouldn't even do hydration for him, even though his chief
complaint of the inability to drink water was written through this doctor[sic].

All I know is that there is not one main oncologist who will provide consistent care for us
at City of Hope. There is a pain specialist at COH that truly does everything she can to
help us, but even she is limited. There is only 2 pain specialists at COH, a hospital
reknowned for cancer care. Cancer causes a lot of pain, so how come they don't hire
more pain specialists?

There really is a management problem at this hospital. If we didn't get to admit him in, we
wouldn't have been able to see the pain specialist and radiologist when we needed to.




                                              AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
DOCTORS CAN BE BLOGGERS




                  AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
HEALTHCARE BLOGGERS
   http://runningahospital.blogspot.com/

   http://oncrn.blogspot.com/

   http://www.codeblog.com/

   http://doctordavidsblog.blogspot.com/




                                AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
WHAT PATIENTS REALLY SHARE


    AngryMom.blogspot.com

    PlanetBananas.com

    CancerVacation.com

    Blamedrewscancer.com




                            AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
WORDPRESS OR BLOGGER
Pick a name
•  Short and relevant
Pick a theme
•  This can be changed 8289324 times, this doesn’t matter
About me page
•  If this is not anonymous it should link to a bio page at COH
•  Credentials
•  Passions
•  Education




                                 AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
POSTS
Title is everything
150 characters that follow are almost everything else
Images
•  Flickr
•  MorgueFile
Link to interesting content




                              AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM

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City of hope presso

  • 2. WHY PEOPLE WRITE BLOGS To share expertise To connect with a community To sell things/ideas As a therapeutic tool To gain knowledge To sway public opinion AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 3. WHY DO PEOPLE READ BLOGS Accidentally: •  Search engines •  Links from friends via email •  Links from social networks With Purpose: •  An emotional investment in the author’s life or perspective AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 4. KEY POINTS IN BLOG WRITING Passion Headlines Originality Searchability AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 5. GOOGLE FOR “BREAST CANCER” 1.  NIH 7.  WebMD 2.  BreastCancer.org 8.  Mayo Clinic 3.  Susan G Komen 5k 9.  Cancer.gov 4.  Susan G Komen 10. Cancer.org 5.  Wikipedia 11. TheBreastCancerSite.com 6.  NationalBreastCancer.org AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 6. AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 7. FORUMS Cancerforums.net BreastCancer.org Poz.com eHealthForum.com From a strabismus forum: AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 8. AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 9. YouTube AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 10. HEATHCARE IN BLOGS One nurse made a big bloody mess while accessing Jesse’s vein for a blood draw. We were concerned that she was getting covered in his blood without wearing any gloves… bad. (I wonder what infectious disease girl would think of that!) One respiratory tech came to do Jesse’s breathing treatments DURING the contrast CT scan. Seriously? He’s a little busy right now…. kristinology.com AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 11. After waiting all day without a drop to drink or bite to eat, as per presurgical instructions, I finally found out that they wouldn’t be able to take me for surgery today to insert my port after all. A full day of scheduled procedures + an emergency added to the schedule at the last minute meant that they just woudn’t get to me today. So at 3:15 I was able to eat breakfast and have my morning Diet Coke. The nurses finally found me another room too – I woke at 6 a.m. to the sound of banging on the walls and power drills shortly thereafter, as the hospital pit crew deconstructed the room next to me. I don’t know what they were doing exactly, but the door was covered with layers of plastic sheeting and even the nurses weren’t to knock. I’m happy to be moved down the hall, even if it did mean lying on the couch in the family waiting room most of the day, until they were able to find me a bed in another room. Toddler Planet AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 12. i'm sure every year i write about it - about the beautiful hideousness that is oncology at the holidays. in the past, i'm sure i've used words like poignant. this year i think i'll use sucks - infinitely less poetic, but oh so accurate. when your well-meaning spouse and kids say 'tell me about your day', you'll think with equal parts truth and cynicism you don't mean that. because here's the thing - i really don't have the words...and if i find them - watch out - you seriously might regret asking. but they'll keep asking and the patients that occupy much of your time and your mental space will become known to your family on some level: 'mom, how's your surfer doing?' - he's hanging in there 'how's the gardener?' - she's doing great 'how's the young mom?' - she's not doing so well OncRN AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 13. AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 14. NOT ALL REVIEWS ARE CREATED EQUAL Too bad I cannot give them a zero. My dad has been a patient here numerous times. My dad was diagnosed with cancer last Christmas plus I found out that there were other things wrong too. I feel that city of hope did not help my dad. My dad passed away on Valentines day. I really miss my dad. I will not recommend this hospital to anyone. Yelp AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 15. SOME REVIEWS NEED TO BE ADDRESSED This is an update of my recent review. The nurses at City of Hope are fantastic; however they are limited to what the doctor orders. Currently, we do not have a primary oncologist because the oncologist does not want to be responsible for any of my family member's care. The primary oncologist wouldn't even do hydration for him, even though his chief complaint of the inability to drink water was written through this doctor[sic]. All I know is that there is not one main oncologist who will provide consistent care for us at City of Hope. There is a pain specialist at COH that truly does everything she can to help us, but even she is limited. There is only 2 pain specialists at COH, a hospital reknowned for cancer care. Cancer causes a lot of pain, so how come they don't hire more pain specialists? There really is a management problem at this hospital. If we didn't get to admit him in, we wouldn't have been able to see the pain specialist and radiologist when we needed to. AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 16. DOCTORS CAN BE BLOGGERS AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 17. HEALTHCARE BLOGGERS http://runningahospital.blogspot.com/ http://oncrn.blogspot.com/ http://www.codeblog.com/ http://doctordavidsblog.blogspot.com/ AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 18. WHAT PATIENTS REALLY SHARE AngryMom.blogspot.com PlanetBananas.com CancerVacation.com Blamedrewscancer.com AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 19. WORDPRESS OR BLOGGER Pick a name •  Short and relevant Pick a theme •  This can be changed 8289324 times, this doesn’t matter About me page •  If this is not anonymous it should link to a bio page at COH •  Credentials •  Passions •  Education AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM
  • 20. POSTS Title is everything 150 characters that follow are almost everything else Images •  Flickr •  MorgueFile Link to interesting content AUGUST 2012 JESSICA GOTTLIEB JESSICA@JESSICAGOTTLIEB.COM